cats-foundation.org Report : Visit Site


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    Server:Apache...
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    The main IP address: 91.208.99.12,Your server United Kingdom,Maidenhead ISP:UK Webhosting Ltd  TLD:org CountryCode:GB

    The description :the cure and action for tay-sachs foundation (cats) is a charity which was established to raise awareness of tay-sachs, fund potential treatments through sponsorship and provide support to families...

    This report updates in 19-Jun-2018

Technical data of the cats-foundation.org


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Latitude: 51.522789001465
Longitude: -0.71986001729965
Country: United Kingdom (GB)
City: Maidenhead
Region: England
ISP: UK Webhosting Ltd

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DNS

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HtmlToText

the cats foundation - cure & action for tay-sachs -- the cats foundation | cure and action for tay-sachs the diseases about us annual report july 2012 – june 2013 june 2011 – june 2012 family support european family conference 2014 conference – france 2013 conference – austria fundraising donate gift aid form news newsletter cats 10k contact us the diseases about us annual report july 2012 – june 2013 june 2011 – june 2012 family support european family conference 2014 conference – france 2013 conference – austria fundraising donate gift aid form news newsletter cats 10k contact us donate on justgiving now about tay-sachs and sandhoff tay-sachs and sandhoff disease are genetic diseases which are terminal illnesses in children. waste products build up in their brain and over period of time the children lose their ability to eat, walk, crawl, see, hear and move. they become completely dependent on their parents and many lose their fight against tay-sachs and sandhoff disease by the age of five. what? tay-sachs and sandhoff disease are genetic diseases caused by the lack of an enzyme in the brain. read more symptoms? the symptoms of tay-sachs and sandhoff are long and varied and differ between individuals. read more treatment? there is currently no cure or treatment available although work is being undertaken to find one. read more read more eacademy for tay-sachs & sandhoff app we are delighted to announce that to coincide with rare disease day on the 28th february 2015 the cure & action for tay-sachs (cats) foundation launchd the eacademy for tay-sachs and sandhoff disease app which the charity designed! in 2014 the cats foundation was one of the genzyme patient advocacy leadership (pal) award winners. the charity was awarded a grant of $15,000 to create an app for smartphones and tablets which is aimed at providing caregivers of individuals with tay-sachs and sandhoff information on the diseases, symptom management and many other subjects. we hope that this app changes the way in which families affected by tay-sachs and sandhoff disease are able to access information to help in their role as a carer. we have big plans for the eacademy for tay-sachs and sandhoff disease app and it will be regularly updated with new content covering new subjects. download the eacademy app on the itunes app store here . download the eacademy app on the goggle play app store here . download the eacademy app on the windows app store here . read more about us the cure & action for tay-sachs (cats) foundation was established in june 2011 by daniel and patricia lewi. their daughter amelie was diagnosed with tay-sachs at seventeen months of age in march 2011 and at the time there was no uk based charity dedicated to providing support to families affected by tay-sachs or sandhoff disease. the cats foundation’s main focus is supporting families affected by tay-sachs and sandhoff whilst also raising awareness of the diseases and funding the research for a potential treatment for the diseases. the charity has also been instrumental in establishing the european tay-sachs charity consortium (etscc) and is a member of the uk lsd collaborative. a short video on the history of the charity can be seen below. read more family support at the cats foundation we support our member families in a variety of ways to ensure that an individual suffering from tay-sachs and sandhoff disease have as high a quality of life as possible. by helping families with various different services it means that they do not feel isolated when coping with the disease and have access to a support network. equipment the equipment we provide has a direct impact on an individual’s quality of life. read more respite trips by providing access to respite trip funding it means that families can spend some quality time together. read more support we have a support network which families can join to meet others who have a loved one affected by the diseases. read more read more research the work into a gene therapy trial for tay-sachs and sandhoff disease (gm2 gangliosidosis) being undertaken in cambridge has steadily been progressing. several significant steps have been achieved since the team was awarded its grant of £2.84 million from the uk medical research council (mrc) for the trial and each day brings us closer to achieving our goal of having a treatment for these diseases. the cats foundation is actively involved in this research and is the nominated patient organisation for the planned clinical trial. more information on this can be found below. research updates find out everything about the research into a potential gene treatment for tay-sachs and sandhoff. read more research team the research team is based in cambridge who are working with colleagues all over the world. read more research articles read all the research articles about tay-sachs and sandhoff disease. read more read more fundraising we undertake many fundraising activities to raise money to support families affected by tay-sachs and sandhoff disease and to also fund the research for a potential treatment for the diseases. we are reliant on the generosity and enthusiasm of our supporters who have enabled us to have a positive impact on so many children suffering from these terminal illnesses. hold an event hold your own fundraising event for the charity. read more join an event join one of our existing fundraising events and take part. read more get in touch get in touch with us about your fundraising idea. get in touch read more donate donating to the cats foundation could not be simpler, and the easiest way is to use the justgiving service online. all you have to do is click on the image below and it will take you to the charity page where you can make your donation. donate on justgiving now member of: supported by: copyright © 2014 · all rights reserved · the cure & action for tay-sachs (cats) foundation is a registered charity in england & wales (1144543)

URL analysis for cats-foundation.org


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http://www.cats-foundation.org/latest-news/
http://www.cats-foundation.org/wp-content/uploads/2014/07/the-cats-foundation-trustee-annual-report-year-1-june-2011-30th-june-2012.pdf
https://i0.wp.com/www.cats-foundation.org/wp-content/uploads/2015/02/2014_supported_by_jfgd_gduk_landscape-75.jpg
http://www.cats-foundation.org/tay-sachs-sandhoff-disease/
https://i1.wp.com/www.cats-foundation.org/wp-content/uploads/2015/02/lsd-logo-75.jpg
http://www.cats-foundation.org/fundraising-2/
http://www.cats-foundation.org/gift-aid-declaration-form/
http://www.cats-foundation.org/feed/
http://www.cats-foundation.org/wp-content/uploads/2014/09/family-conference-brochure-version-12-small-file-size.pdf
http://www.cats-foundation.org/trustee-annual-report/
http://www.cats-foundation.org/european-family-conference/
http://www.cats-foundation.org/about-us/
http://www.cats-foundation.org/research/
http://www.cats-foundation.org/wp-content/uploads/2014/09/family-confernce-3.compressed.pdf

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WHOIS LIMIT EXCEEDED - SEE WWW.PIR.ORG/WHOIS FOR DETAILS

  REFERRER http://www.pir.org/

  REGISTRAR Public Interest Registry

SERVERS

  SERVER org.whois-servers.net

  ARGS cats-foundation.org

  PORT 43

  TYPE domain

  REGISTERED unknown

DOMAIN

  NAME cats-foundation.org

NSERVER

  IGOR.NS.CLOUDFLARE.COM 173.245.59.119

  KARA.NS.CLOUDFLARE.COM 173.245.58.123

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